Nicole Zeitzer Johnson is on a mission to find a cure for the rare disease her daughter Josie was born with, called FOXG1 syndrome. 

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Nicole co-founded the FOXG1 Research Foundation dedicated to improving the lives of every child in the world with FOXG1 syndrome and related disorders.

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Nicole created the Joyfully Josie of children’s books and the Live Joyfully Education Program to help all children understand disabilities.